The “association is” all of us. It is overseen by the Board of Directors, which is divided into 6 committees.
We operate with an associative pacing:
- We assume that everyone does what they can
- We operate with rotating roles among members
- We work in pairs when possible
- We limit meetings to one hour
BOARD
OF DIRECTORS
Decisions
- Taking initiatives
- Budgets
- Link between committees
- Emergency management
- Responsibility according to decision level
- Balanced operation with committees
- Decision on national and international collaborations
- Volunteer vision
SOCIAL
COMMITTEE
Patient support
- Support for patients, their empowerment and quality of life
- Administrative assistance
- Raising awareness among medical and paramedical staff about patient realities
- Collaborations with medical and paramedical staff
We are actively seeking volunteers.
COMMUNICATION
COMMITTEE
Awareness
- Raise awareness among the population (general public, doctors, medical centers, etc.)
- Inform patients
- Website and social media management
- Contact with press and media
EXTERNAL
RELATIONS COMMITTEE
Recognition
- Lobbying governments, administrations, politicians, INAMI, health insurance companies (advisory doctors), occupational medicine, union and employer representatives, CPAS (SPPIS), employment offices, etc.
- Coordination of national and international partnerships
- Create federation of patient associations
FINANCE
COMMITTEE
Treasury
- Fundraising dedicated to the association’s objectives and research
- Accounting management
- Sponsorship
SCIENTIFIC
COMMITTEE
Research
- Providing expertise
- Coordinating collaborations with research teams
- Administrative and financial support for research
- Scientific monitoring
- Therapeutic education
- Simplify for the general public
- Produce content and publish
- Inform and support other committees according to objectives
- Credibility/scientific posture
COMMITTEE
0-25
Pediatric Long Covid
- Specific approach for 0-25, children and parents
- Connection with all committees according to objectives (transversal)
- Collaboration with ONE, PMS, PSE, schools and pediatrician networks
Pediatric Long Covid
- Specific approach for 0-25, children and parents
Pediatric Long Covid
- Specific approach for 0-25, children and parents
